IH Awareness –I.H.R.F.
Rare Disease Day 2011
February 28th 2011
As many of you are already aware, I’m very involved with the IH awareness campaign. The IHRF are running a fantastic IH awareness campaign at the moment on their facebook page – it’s linked with rare disease day and it’s called the Wall of Hope. Displaying the ‘Faces of IH’ – it really makes you realise how IH sufferers look absolutely fine when they’re not!
Here’s the link for you to check it out –
This is our photo from the ‘Wall of hope’
For more information on IH and the IH Research foundation please go to
IH Brain Pain Team -
If you’d like to get more involved with raising awareness then please check out the IH Brain Pain Team. We work hard to raise awareness of IH and the IHRF – supporting the IHRF.
We’re on Facebook – http://www.facebook.com/IH.Brain.Pain
Twitter – http://twitter.com/IHBrainPain
and the website is - http://www.ihbrainpain.org/
The days are finally starting to get a little warmer and Spring is just around the corner. It has been a long hard winter again this year, yet despite the bitter temperatures we couldn’t help but admire nature’s beauty and be grateful that we live in such a beautiful area.
Here are a few photos from the past few months…
Thanks to everyone who has sent us emails over the past few months, and commented on our facebook page and twitter pages … we really appreciate your support!
We love to hear from you, so if you’d like to get in touch with us there are a few ways of doing it …. either email us at email@example.com
or go to our facebook page -