Friday, February 18, 2011

Posted for Victoria

Recently I’ve been asked to write quite a few blogs – writing from a carer’s perspective, which has been a new and exciting experience! 

IH Awareness –I.H.R.F.

Rare Disease Day 2011

February 28th 2011

As many of you are already aware, I’m very involved with the IH awareness campaign. The IHRF are running a fantastic IH awareness campaign at the moment on their facebook page – it’s linked with rare disease day and it’s called the Wall of Hope. Displaying the ‘Faces of IH’ – it really makes you realise how IH sufferers look absolutely fine when they’re not!

Here’s the link for you to check it out –

http://www.facebook.com/pages/Intracranial-Hypertension-Research-Foundation-IHRF/185094677335

This is our photo from the ‘Wall of hope’

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For more information on IH and the IH Research foundation please go to

http://www.ihrfoundation.org

IH Brain Pain Team -

If you’d like to get more involved with raising awareness then please check out the IH Brain Pain Team. We work hard to raise awareness of IH and the IHRF – supporting the IHRF.

We’re on Facebook http://www.facebook.com/IH.Brain.Pain

Twitter –  http://twitter.com/IHBrainPain

and the website is -  http://www.ihbrainpain.org/

Finally …..

The days are finally starting to get a little warmer and Spring is just around the corner. It has been a long hard winter again this year, yet despite the bitter temperatures we couldn’t help but admire nature’s beauty and be grateful that we live in such a beautiful area.

Here are a few photos from the past few months…

SAM_2319
SAM_2336
SAM_2332

Thanks to everyone who has sent us  emails over the past few months, and commented on our facebook page and twitter pages …  we really appreciate your support!

We love to hear from you,  so if you’d like to get in touch with us there  are a few ways of doing it …. either email us at victoria@caitlinswish.co.uk

or go to our facebook page -

or you can tweet us on twitter at

@VTaylorAuthor    or @Artymum77

Till next time

Take care

Love

Victoria. xxx

 

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